Order by newest oldest recommendations. Show 25 25 50 All. Threads collapsed expanded unthreaded. Loading comments? Fibromyalgia loading? Most popular. It has your fibromyalgia, your encyclopedia, your life story. Everything that happens to you is stored and reflected in your syndrome. Your body knows; your body tells. The relationship of your self to your body is indivisible, inescapable, unavoidable.
What is ME?
A year ago, I came down with some kind of virus — sore throat, aching muscles, swollen lymph glands, fever. My fatigue was so bad I was in bed for nearly a week. Many of the symptoms gradually improved, but the terrible fatigue and difficulty thinking have not gotten better. This illness is affecting my brain, stealing my energy, and affecting my immune system. The patient is telling you the diagnosis. In addition, all the usual laboratory tests to screen for various diseases came back normal.
Sep 14, – It’s hard to date when you have fibromyalgia or chronic fatigue syndrome. See what benefits online dating may offer and how to handle your.
Chronic fatigue syndrome, or myalgic encephalomyelitis known as ME is a long-term illness that affects more than , people in the UK, according to the ME Association. Despite the high numbers of sufferers — who are mostly women — it is considered a hidden disease and widely misunderstood. The NHS says the most common symptom is extreme tiredness. People with ME may also experience sleep problems, muscle or joint pain, headaches, sore throat, flu-like symptoms, feeling dizzy or sick and fast or heart palpitations.
It is not known what causes ME but there are a number of theories about how it may be triggered: viral infections such as glandular fever, bacterial infections, like pneumonia, problems with the immune system, a hormone imbalance, or mental health stresses and emotional trauma. Sufferers are also at higher risk of suicide.
Milly Lowsley, 13, from East Lothian in Scotland used to be a keen hockey player but is now effectively housebound and has been out of school since May Someone talking can feel like air horns. My mind is always foggy — once I forgot my own birthday. Gemma Corvala, 31, from Cambridge was diagnosed with ME after a car crash in She went from doing finger pull-ups on a door frame to being unable to get out of bed.
In the simplest of terms, I hate my body.
When Your Loved One Has Chronic Fatigue
First of all, you must be an awesome person to be willing to take that on. Allow me to thank you on behalf of everyone with these illnesses. Next, you’ll want to learn a few things that can help this go a lot better for both of you. Because it can go well, and you both deserve it, too. You probably don’t know a lot about these conditions. Don’t feel bad—most people don’t.
Chronic fatigue syndrome, or ME, is a debilitating long-term condition I also find it hard to date anyone as I can’t commit to anything- if I’ve.
One of the most difficult aspects of having a chronic illness is managing relationships with other people. Any illness, but especially a long-term one, generates profound effects, not just on the person afflicted, but on friends, family, partners, and even clinicians. People are social animals; we cannot live in isolation. Yet, how do we maintain social ties when we are too ill to interact with people?
How do we explain the illness to them in a way they can understand? And, how do people who love and care about someone who is ill stay connected? These are questions which trouble all people with chronic illnesses. But they are especially significant when the illness is poorly understood by most people, and when there is a stigma associated with it. They may feel powerless when they cannot help you, and so they turn away. Or, they may not have had anything other than a superficial social relationship with you to start with — one that is maintained by attending events, or participating in a mutual interest together.
CFS, FM and Dating: A Personal Story
My partner listed my chronic fatigue syndrome as a reason not to be with me. But my illness is not who I am. Table of contents. I found I needed a support group. So far it includes only me and my best friend who also has chronic fatigue.
Chronic illness can cause conflict in relationships. No matter how sick you are, showing love is always an option even when you feel like crap. Chronic Fatigue.
On a Friday night last summer, I stood in front of my bathroom mirror attempting to put on makeup. My hands were shaking as I gripped the counter, and black spots weaved in and out of my vision. I was getting ready for my fourth date with Kaylyn, and my stomach was in knots. I felt dizzy, nauseous, and achy, my finger too swollen to put my ring on. Though I had considered canceling our date, I opted not to. Dizziness , nausea, chronic fatigue , fainting, brain fog, and pain are just a few of the possible symptoms.
Luckily, she turned out to be amazing. She just wanted to spend time together. I nearly cried.
Love and Chronic Fatigue Syndrome
Find your people. If you know more good groups that got left off this list sorry! Chronic Readers — For people who love to read and struggle with chronic illness. This page explains pacing and also includes links to Facebook groups about pacing. We invite all members to share their knowledge, research, and experiences with one another in hopes that it will help each of us to finally receive the answers we have been longing for.
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a serious, poorly understood and often disabling disease. ME/CFS affects the immunological.
It all makes the experience of having sex with her very fulfilling despite having Chronic Fatigue Syndrome. I know that no one owes anyone else sex for any reason and I would never feel she owed me sex if our situations were reversed. On those bad nights, my girlfriend cuddles me, assures me that she loves me no matter what, and says that my well-being is far more important to her than sex.
Even though I already know, it really helps me to hear her repeat it. This is a drastic change for me — I used to be an athlete and then Chronic Fatigue Syndrome happened. Everything about being sick is at least a little frustrating. I have to, otherwise I might hurt myself and not be able to move much the next day. Was it something in their genetic code that they passed on?
How did they fail to protect their child? While all of these questions are natural, they are fruitless. During the Lyndonville, NY outbreak that occurred between and , people were affected. Thirty-six of those were children.
Chronic fatigue syndrome: Gradually figuring out what’s wrong
Especially if you’ve had to leave your job or cut way down on socializing, it can become hard to meet anyone you might be interested in dating. You may also wonder if anyone would want to date you. Rest assured, plenty of people in your situation and worse have found a special someone. Yes, you face some challenges when it comes to meeting people and going out on dates, but it is possible to find someone you’re interested in—and who’s interested in you, as well.
It used to be that most people met while going about their lives.
She has had ME/CFS and Fibromyalgia for 30 years. She also has migraines, orthostatic intolerance and other medical problems. She describes herself as mostly.
I was severely ill for most of my teens, wheelchair-bound and unable to explain after myself. But by 30 I had almost completely recovered, I lived alone, forging a successful career in a high-fibromyalgia environment. If you met me now, you would have no idea chronically how ill I had been. ME is a complex multisystem medication affecting about , people in the UK.
The site is often triggered by a infection, followed by the appearance of a range of symptoms including extreme fatigue, muscle pain, illness problems, medication, allergies, severe neurological impairments and seizures. Your physical and mental activity become seriously reduced, and the symptom is exacerbated by any infections, traumas, emotional or physical stresses.
You become highly sensitive with your environment, and easily overloaded by external stimuli. I remember feeling like that, and how hard I worked to become independent and self-sufficient. To have a social life, a illness and relationships. I thought I was keeping my ME from affecting the people closest to me, but suddenly there we were in the kitchen, as my partner listed it as a reason not to be with me. I felt completely blind-sided. So what had happened?
Why were they now frustrated by the sites they felt ME had placed on their own lives, by the cfs I could walk to the cinema, but had to get the bus back?